Blog > November 2008 > A Match Is Found!

A Match Is Found!

Hi,
Talked to the Bone Marrow Transplant Coordiantor in Cinci. They found a perfect match…which is an 8/8. I guess that is what they consider to be perfect. They said matching on 9 and 10 isn’t that big of a deal. There is a different standard of "perfect"  from one center to the next, it seems. Anyhow, there is 2 more donor samples in the lab and they could possibly be a 10/10. We should get the results from the other donors next week or the week after…might take longer because of the holiday.
So, now we are faced with a HUGE decision!! A decision no parent should ever have to make for their child. Nick is doing well on the Gleevec and this could maintain him through high school or longer. No one knows what the long term effects of Gleevec are on children ...it is too new.
On the transplant side...this is a very risky procedure with a very scary mortality rate. But, it is the only known cure for CML.
So, do you transplant now while he is young and "healthy" or do you wait and see what happens with the Gleevec??
We have spoke with one Oncologist that say's wait it out for 18 months and see what happens
and two other oncologists that say transplant if you have a perfect match.
So, faced with this decision, I ask for you prayers....
Have a wonderful weekend!!!
Posted: 11/21/2008 3:19:59 PM by Sandy | with 171 comments
Comments
Kevin Pierson
I pray and know that God is on your side. I can’t imagine what you and Dan are going through. This whole situation sickens me when I think about it. I wish we could wave a magic wand and make this go away. Pray on your decision and maybe ask a few more Oncologists. Thanks for updating the blog.
11/25/2008 3:50:05 PM
Cheryl Elswick
I am so happy that you found a match, however, I know that a bigger decisison needs to be made. My heart goes out to you and Dan. As a mother I am not sure what I would do, however, I am sure that god will point you in the right direction. Take Care and I love you guys!
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Nick's Big Blog

This blog is for sharing news and any other topic related to Nick and his fight. We will be updating these posts as often as possible, so check back often, and please leave a comment, we would love to hear from you!

 

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