Blog > May 2009 > Day +83

Day +83

Sorry its been a week since we posted. We have not realy had a lot to post about, which is a good thing. Nick had his doctor appointment yesterday and is still doing well. He has been doing six hours per week of school instruction for the past few weeks.

The doctors are starting to mention us coming home. As long as he continues to do well, we should be home by the end of the month. His primary care would be transfered back to Akron Children's Hospital with a once a month visit back to Cincinnati. Once we get home, he will still be confined to our home with isolation from visitors, but it will sure make his and our life much easier.

They are going to do a Bone Marrow Aspiration sometime this week They want to check his new marrow to see how the cells are maturing. We have also asked them to remove his central lines. The central lines being in his chest increases the risk of infection. The draw back of having them removed is that he will have to be stuck a few times per week for blood draws and the IVIG that he still needs.

We will post again when we know the day he will have his aspiration and the line removed. Both are considered surgical procedures.

Thanks for checking in......
Posted: 5/16/2009 5:50:22 PM by Dan | with 219 comments
Comments
Nolan Luther
glad to hear your doing well nick keep it up.
5/16/2009 9:59:26 PM
Rosler's
Glad to see there is not a lot to report on! We will continue to pray for the uneventful healing to continue! Hang in there....home is just around the corner! Hugs ~ Barb, Vance, Leah, Ben, Lucas and Isaac
5/17/2009 8:43:52 AM
Dane Llewellyn
Hey Nick I hope you get to come home soon!
5/17/2009 10:03:26 AM
Haley B
I cannot wait until you come home!!! Stay Strong
5/17/2009 11:43:32 AM
Parslow's
Great news guys!!..keep fighting , cant wait to see you all get back home!
5/17/2009 12:17:23 PM
Mrs. Hilbish
Greetings from school! It is a bright spot in my day when I read about your progress. You are such a strong young man. Your family is pretty amazing too. Keep fighting hard. I look forward to reading more good news. My happy thoughts and prayers are still coming your way. God is Great!
5/18/2009 1:17:12 PM
Annette
Wow!! What a wonderful report! Sure hope things continue in this way. I will continue to lift all of you up to the Lord in my prayers, and am looking foreward to hearing that the bone marrow is maturing at a remarkable rate...just as Nick has been recovering. Nick; hang in there, buddy...the end of the month is just around the corner. I know you will still be restricted from much visitation when you return home, but I imagine you will be SO much more comfortable just being back in your own home! Hope you make it back for your birthday! If I remember right, it is the 23rd of the month. Wishing you all things bright and beautiful, and God's richest blessings. Still continuing to pray for the others there, as well. Have a wonderful evening, and may tomorrow find you just a bit closet to the end of this long battle!! Love in Christ, ~Annette
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In the name of God, stop a moment, cease your work, look around you.
12/7/2009 7:24:18 PM
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Students achieving Oneness will move on to Twoness.
12/7/2009 7:25:38 PM
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Never make a defense or an apology until you are accused.
12/7/2009 7:27:09 PM
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Someone's boring me. I think it's me.
12/7/2009 7:27:32 PM
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When we got into office, the thing that surprised me the most was that things were as bad as we'd been saying they were.
12/7/2009 7:28:59 PM
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All love that has not friendship for its base, is like a mansion built upon sand.
12/7/2009 7:29:23 PM
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Curiosity killed the cat, but for a while I was a suspect.
12/7/2009 7:29:35 PM
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[M]aybe the most any of us can expect of ourselves isn't perfection but progress.
12/7/2009 10:03:33 PM
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Music is essentially useless, as life is.
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When your work speaks for itself, don't interrupt.
12/7/2009 10:06:20 PM
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You have to recognize when the right place and the right time fuse and take advantage of that opportunity. There are plenty of opportunities out there. You can't sit back and wait.
12/7/2009 10:07:05 PM
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He who labors diligently need never despair; for all things are accomplished by diligence and labor.
12/7/2009 10:10:53 PM
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I lived what most people call the good life. I was happy, but deep inside I always felt that, with the short amount of time we are given to live and love in this world, we spend too much time loving things instead of people.
12/7/2009 10:11:43 PM
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12/8/2009 5:13:34 AM
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Each individual woman's body demands to be accepted on its own terms.
12/10/2009 2:59:32 AM
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Each individual woman's body demands to be accepted on its own terms.
12/10/2009 2:59:38 AM
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The only thing that saves us from the bureaucracy is inefficiency. An efficient bureaucracy is the greatest threat to liberty.
12/10/2009 6:21:01 AM
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There is still a difference between something and nothing, but it is purely geometrical and there is nothing behind the geometry.
12/10/2009 6:24:57 AM
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Sometimes love will pick you up by the short hairs...and jerk the heck out of you.
12/10/2009 6:27:08 AM
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So many of our dreams at first seem impossible, then they seem improbable, and then, when we summon the will, they soon become inevitable.
12/10/2009 9:30:44 AM
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It's innocence when it charms us, ignorance when it doesn't.
12/10/2009 9:31:15 AM
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The summer night is like a perfection of thought.
12/10/2009 9:35:42 AM
intercarrier
It's so much easier to write a resume than to craft a spirit.
12/10/2009 9:41:32 AM
contrapuntist
I stand in awe of my body.
12/10/2009 9:42:00 AM
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It pays to be obvious, especially if you have a reputation for subtlety.
12/10/2009 9:42:37 AM
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It is common sense to take a method and try it. If it fails, admit it frankly and try another. But above all, try something.
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12/10/2009 4:21:20 PM
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12/10/2009 10:23:39 PM
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I've grown to realize the joy that comes from little victories is preferable to the fun that comes from ease and the pursuit of pleasure.
12/10/2009 10:24:38 PM
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He will always be a slave who does not know how to live upon a little.
12/10/2009 10:25:45 PM
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Things are only impossible until they're not.
12/10/2009 10:27:39 PM
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Equal opportunity means everyone will have a fair chance at being incompetent.
12/10/2009 10:31:56 PM
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Now is the time for all good men to come to.
12/10/2009 10:33:37 PM
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The crux... is that the vast majority of the mass of the universe seems to be missing.
12/10/2009 10:34:18 PM
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12/11/2009 5:14:20 AM
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You cannot be mad at somebody who makes you laugh - it's as simple as that.
12/11/2009 10:48:31 PM
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Learn to get in touch with the silence within yourself and know that everything in this life has a purpose.
12/11/2009 10:49:17 PM
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Funny business, a woman's career: the things you drop on the way up the ladder so you can move faster. You forget you'll need them again when you get back to being a woman. It's one career all females have in common, whether we like it or not: being a woman. Sooner or later, we've got to work at it, no matter how many other careers we've had or wanted.
12/11/2009 10:51:32 PM
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Insanity in individuals is something rare - but in groups, parties, nations and epochs, it is the rule.
12/12/2009 6:59:36 AM
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Life is divided into the horrible and the miserable.
12/13/2009 1:41:59 AM
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Youth would be an ideal state if it came a little later in life.
12/13/2009 1:44:28 AM
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Fall is my favorite season in Los Angeles, watching the birds change color and fall from the trees.
12/13/2009 1:51:57 AM
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Everyone wants to be Cary Grant. Even I want to be Cary Grant.
12/13/2009 1:54:03 AM
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If it weren't for baseball, many kids wouldn't know what a millionaire looked like.
12/13/2009 1:57:18 AM
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Good judgment comes from experience, and experience comes from bad judgment.
12/13/2009 1:59:39 AM
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Order is not pressure which is imposed on society from without, but an equilibrium which is set up from within.
12/13/2009 7:13:58 AM
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The trouble with having an open mind, of course, is that people will insist on coming along and trying to put things in it.
12/14/2009 8:40:07 AM
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The trouble with having an open mind, of course, is that people will insist on coming along and trying to put things in it.
12/14/2009 8:41:08 AM
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I think people want their illusions and writers are mostly illusion. When you read their words, you read a flattened, incomplete version of the writer.
12/14/2009 8:42:39 AM
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In all recorded history there has not been one economist who has had to worry about where the next meal would come from.
12/14/2009 8:43:59 AM
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We have too many high sounding words, and too few actions that correspond with them.
12/14/2009 9:12:34 PM
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When we ask for advice, we are usually looking for an accomplice.
12/14/2009 9:13:58 PM
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A chess genius is a human being who focuses vast, little-understood mental gifts and labors on an ultimately trivial human enterprise.
12/14/2009 9:17:04 PM
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Sometimes the cure for restlessness is rest.
12/14/2009 9:22:32 PM
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